How can a person ask intelligent questions and make informed decisions when our doctors are so rushed? How can we learn about a rare disease when the very nature of it is that it's rare? Where do we turn for help and hints and comfort when no one around us can possibly understand what we're going through?

With the help of many wonderful contributors, some information has been compiled to help with the understanding of Kienbock's Disease.

If you are the parent of a child with Kienbock's Disease, this is for you

You can't live with it, and you can't shoot it! Suggestions for your Kienbock's journey. Getting organized, finding a doctor, preparing for surgery and recovery. All the things you need to know to have a good trip!

A page of suggestions to help you around the house, before, during and after your surgery, when you find yourself suddenly one-handed! Thoughtfully contributed by the women of the Yahoo Kienbock Disease Support Group.

We have hints to help you when you have swelling.

We have hints to help you when you are in a cast.

Support from people who have "been there, done that" and understand what you're going through. We have a wealth of tips and tricks as well as information for the best online support group.