
| Kel's Kienbock's Disease Story |
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In the beginning of April, I started getting pain. It felt like I had just sprained my wrist, but then it turned into a bad aching pain, so I went to my family doctor. After taking x-rays, I was issued a wrist brace and was told to wear it all the time, but I wasn't able to wear it all the time at work. He scheduled me to see another doctor, a week later. The second doctor put me on steroids and doubled my Celebrex to 400 mg a day, and told me to wear the brace when I sleep. So at that point I was taking Celebrex, Lora-tabs, and relaxers for my neck. Two weeks later, I went back to the second doctor and he then scheduled me for a nerve test to see if I had Carpal Tunnel Syndrome. I returned to the first doctor for a follow up. By that time, the pain was worse and had moved into my thumb. He sent me for an MRI. I canceled my nerve test. After seeing the MRI, he told me I have Kienbocks Disease and arthritis in my neck. He told me not to work, so I took one day off and went right back to work. He scheduled me to see a plastic surgeon. The pain was still bad and the pain I was getting in my thumb had spread to below my fingers. I was having trouble holding on to things and couldn't open things like I should, but I don't give up or give in. I don't let them see me hurt. I wait. On June 1st, I see the third doctor. The visit went good for me, as I was thinking all week that it would be a waste of time, being that it was with a plastic surgeon. The doctor knew all about my disease. He specializes in just the hand. He said for the small towns we live in, he sees maybe one case a year. He gave me a shot in the hand, not steroids or cortisone, but just something to make sure the pain was coming from Kienbocks Disease. He told me all the options I have and what he thinks we should do first, which is trying to lengthen the Ulna bone, because as it looked, my lunate was hanging with no support. This will take a metal rod, pins, and screws. He said with the type of work I do, I would probably be off for three months, or more, depending on how well it goes. The surgery date, which was set for July 5th, was canceled for hospital reasons and rescheduled for July 12th, and took four hours. The doctor said it went well, and I was splinted and sent home. Six days later I was doing some dusting and my arm snapped. I went back to the doctor, where he took x-rays, and saw that I had broken it. The bone was too weak to hold the plate. I was scheduled for another surgery July 18th, to fix what I had broken, and also undo the Ulna Lengthening. He fixed the plate he had already put in, and also added another. I was wrapped and sent home. One week later I was fitted with a formed splint past my elbow, and as long as I behaved he wouldn't cast me. It's been two weeks with this splint and it hasn't been fun. I am in pain all the time, and it isn't over yet. I still have to have another surgery for radius shortening, after the mess I have heals enough. | |
The Original MRI |
The Original X-Ray |
The First Procedure |
The First Procedure |
Her story contiues......... | |
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| Comments or questions in any way concerning Kienbock's Disease are best directed to the Yahoo! Kienbock Disease Support Group. |
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